10/14/09

I haven’t written in a while because there hasn’t been anything new!

We spent the weekend in Orlando at Disney World.  We flew out on Friday and came back home Tuesday evening.  It was a great vacation!  I didn’t really have any problems while we were there.  No buzzing, tingling anything.  The only time the buzzing hit was when we were walking through the airport.  I guess we took things pretty easy while at Disney.  It was very hot and humid, unseasonably so.  Ken was having a difficult time with his asthma so we weren’t running around crazy.  We spent time just hanging out and taking in the sights.  I did get a bit tired by the end of the trip but not  exceedingly so.

Now, we are home and working on shutting down the flower shoppe.  We have until October 31 to sell everything off and be out of our space.  There is a lot of work to be done just to get things out of storage and back closets and displayed where they can be purchased.  The next two and a half weeks are going to be busy, busy, busy!

My next doctor’s appointment is Tuesday the 27th…I’ll be sure to check in then…

09/24/09

Don’t know if I’ll ever quite get used to the constant buzzing and twitching…

I just walked across the room bare-foot and had to look at the bottom of my right foot to see if I had a piece of paper or something stuck to it.  I couldn’t feel the carpet on my heel in a circular area…

09/16/09

I haven’t written lately because I’ve been out of town.

Our trip to Vegas was wonderful.  The show went really well. The crowds were cheering so loudly we couldn’t hear our music for our exit bows!  What a great feeling.  I didn’t have any trouble with the dancing even though it was late and I was tired.  But then again it was only a 10 minute set.

We didn’t get a lot of sleep but I did o.k.  The first day we stayed up 24 hours…between getting up so early to catch the flight, the show late at night followed by dinner and then going sight-seeing afterward.  The second day we woke up to take an hour and a half master class.  I was able to dance through everything!  There was only one step that was truly uncomfortable and made my legs go haywire.

We did lots and lots of walking.  Saturday night we even went roller-skating!  All in all I held up pretty well.  That was a good feeling!

I got home just in time to fly out on a two day trip.  Fortunately it was an afternoon sign-in and worked till midnight both days and I was already used to the late hours because of Vegas.  The flights went well…we had really nice people and a nice crew to top it off.  My only distress was the fact that they dispatched an airplane with no running water to wash our hands!  Here I am, serving food to a lady with a mask on, obviously sick and with two other sick passengers in the  back.  I think it should be illegal to be confined in a tube without anyway for people to was their hands after using the restroom, sneezing, coughing, etc. and especially if you are serving food!  O.K., so they had little (and I mean tiny) wipes in the bathroom sink to use but they were pretty dry, not moist.  They could have at least replaced the soap bottle with a true hand sanitizer liquid…  Anyway, I’ll get off my soapbox (soap…haha) and will check in later!  I’m home now and have rehearsals later tonight.

09/09/09

The nurse left me a voicemail today…said my spinal MRI’s were “clear”!

This is GREAT news!!!   : )

Does that mean it really is all in my head?!?

09/09/09

Everything is going pretty well…  Ken and I went to Maryland with some other friends for the Labor Day holiday.  We spent two days at the Renaissance Festival.  I was pretty tired towards the end of the first day but so was everyone else.  Ken said he thought is was my MS but I think it was more the traveling, etc.  We were bumped off two flights before we finally made it in to Dulles then had an hour drive at 2 in the morning!

The second day I wasn’t nearly as tired.  We did take it a little easier.  Monday night my legs were constantly twitching for a good 3 – 4 hours.  Kind of drives me batty but not painful.  Sitting here I feel different things twitching and/or buzzing.  I guess it’s just something to get used to.

I still don’t have results in from the blood work or MRI’s yet.  It may be a while.  My appointment isn’t until Oct. 27 and I might not know much before then.

This is the weekend we go to Vegas for our number in the big show!  I’m packing and getting ready.  We have our last rehearsal tonight….

09/03/09

2 more MRIs done today…one more needle!  We did lumbar and thoracic views.  No big deal, I don’t mind MRI’s.

Dr. Hughes says I have 11 little lesions on my brain and 2 “not so little”.  Hopefully my spine will be clear.

She is giving me a referral to a doc at Dallas Southwestern so I can “get on the list” for any clinical trials that may come up.

We don’t have the blood results in just yet…only partially.  I don’t know when I’ll have those or the results from the MRIs.  My next appointment isn’t until October 27.

I’m feeling pretty good.  I was understandably tired after working two 13 hour shifts the day after working an 8 hour with a 3:45 am wake up!  Anybody would be tired after that.  Rehearsals went well last night even though I was tired.

I’m now packing for a 3 day weekend trip to Maryland!  : )

Have a great Labor Day!!!

08/30/09

It’s been a pretty good weekend.  I did the flowers for a wedding on Saturday.  Both the bride and groom were very happy and it all went well.

Ken and I were invited to a “Scottish” party on Saturday night which was very enjoyable with good friends.  We didn’t fall off the good diet bandwagon by much.  I drank cucumber water and cheated with a couple of small pieces of homemade shortbread.

I flew on Sunday and then had a staff meeting as a follow -up to the big dance convention…a five hour meeting!

I fly Monday and Tuesday both a 12 hour shift…

Wednesday I get to have a question/answer session with my neurologist!  I’ll let you know if I learn anything new!

8/26/09

8 viles of blood AND a urine sample taken…..Geeeeeshhhhhhhh!

8/26/09

I really like my new doc!!!  Didn’t quite like everything she had to say, but I liked the way she said it.

We are having more tests done to confirm everything.  Since my blood was incinerated in Colorado, I am having more drawn today.  She is going to do lots of different tests on the bloodwork.  Also, I have scheduled 2 more MRI’s – middle spine and lower spine – hopefully these will be clear of lesions….

She said it appears I have had MS for several years by the “excessive” (10-15) amount of lesions I have in my brain and was actually kind of surprised that I haven’t had more severe symptoms prior to now.  She however, is not quite ready to label me with MS until further testing is done.  So, anyone out there in the insurance world who happens to be reading this…I’m not officially diagnosed with anything at this time!

The doc left the room to get some paperwork  copied (yes, I brought my own copy of the lab results of my spinal tap and it’s a good thing I did since the lab hadn’t forwarded them to her as requested – I love having my own copies!).  I came up with about 6 more questions while she was out of the room.  When the nurse came back in with the papers and scripts, she could tell I was disappointed that Dr. Hughes wouldn’t be coming back to answer my questions.  I got a call on my way home that I could come back next Wednesday “to chat” with the doc to get everything answered.  My next official appointment is October 27.  At that time we will see how things look and then I will probably start the process of applying for very expensive injection medications…

Anyway, feeling pretty good overall.  Strange buzzing/tingling sensations in my back and hip anytime I exercise or walk long distances at a fast clip.  We’ll see how I feel after rehearsals tonight.  We’re gearing up for our special “invited” performance in Vegas at the Flamingo on September 11!!!  Don’t want to miss this one…

Oh, the best news…  I’ve lost 5 pounds!!!  : )

08/22/09

I know it’s been a while since I updated!  I do truly appreciate everyone who follows this blog…  Things have just been crazy…but that’s good!!!

As I said in my last blog, I made it through Yaa Halla and came out on the other side a little tired (o.k., a LOT tired) but physically fit overall.  I then flew a one day turn around on Monday and Tuesday.  I felt a little shakey on Monday and was paranoid about being accused of  “appearing like I’d been drinking on the job”, but all went well.  I flew the same turn again on Tuesday with a different crew and I felt a little more normal.

On Wednesday I had to go through recurrant training…that’s where we open all the doors and do a mock evacuation of all the airplanes, put out fires, practice CPR and use the AED amongst other tests and activities.  By this point I was pretty tired and noticed some on my cognitive skills were a little slower than usual but all in all it went really well.

Thursday was a nice quiet day and then Friday we were crazy busy at the flower shoppe!  I flew again today and am really looking forward to sleeping the morning away tomorrow!  I will fly again on Monday and I have my appointment with what will hopefully be my permanent neurologist on Tuesday morning.  I fly out again Tues. afternoon so I probably won’t be able to update before Wednesday.

I’m wondering when I’ll have the energy to clean up all my “piles” created during Yaa Halla between vending, dancing and co-odinating/teching…Hopefully soon!

Thanks again for your support and for keeping up  with me even when I can’t keep up with myself!!!